Duchenne UK

About Duchenne UK

Two families a week in the UK are told that their child has Duchenne Muscular Dystrophy (DMD), a devastating muscle wasting disease that mainly affects boys.

We are an ambitious and highly focused charity investing millions of pounds in research right now to bring treatments and a cure and to help this generation. 

Duchenne Muscular Dystrophy is a devastating muscle wasting disease and is the most common genetic killer of children worldwide. There is no treatment or cure.

In the UK there are around 2,500 patients affected and around 300,000 worldwide. Children will be totally paralysed by their teens and won’t live beyond their 20s.

But thanks to recent breakthroughs, we believe we can save them.

In 2016 the parent led charity was formed by the coming together of Joining Jack and Duchenne Children’s Trust, the two biggest funders of research in the UK. The charity co-founders, Alex Johnson and Emily Crossley, met after their sons were diagnosed.

In six years, Duchenne UK has had a major impact on the DMD field. We have invested millions of pounds in research, clinical trials, supporting trial centres in the UK to run clinical trials and addressing many of the challenges in drug development, helping us move ever closer to effective treatments for DMD.

We are committed to continuing to drive momentum to deliver treatments to help THIS generation of those with DMD.

This is where we need your help. We rely entirely on donations. And we are in a race against time.

Please help us END DUCHENNE by challenging yourself to take part in TRI 4 DUCHENNE and fundraising for us.

For more information please visit our website.